There’s a campaign which raises awareness for ME (Myalgic Encephalomyelitis) called #millionsmissing. There will be events around the country next week on May 12th, with many sending in shoes which are laid out in public areas to represent those who are unable to attend. Others will post online, anything we can to raise the public (and sadly medical) awareness of just how devasting ME is. Details can be found at:
In essence there are millions of us across the world who feel we are missing from our lives. Many are bed bound, some for years. I often thank the stars my ME isn’t quite that severe, although there are many days I’m unable to walk around or get dressed, let alone leave the house. I’ve made a pact with myself that I will try to see other humans twice a week, even if just for coffee and a short natter, because I spend so many hours at home, alone.
I’m a natural introvert who has always enjoyed my own company, even as a child, so thankfully I don’t often feel the loneliness of many. But it is incredibly hard to maintain friendships when even a phone conversation can be exhausting, and sometimes the thought of replying to a message feels about as doable as climbing mountains. So I keep my pact with myself as best as I can, and will do for as long as I can, we all need human contact and shared laughter is a beautiful medicine of it’s own.
Over the past few years I’ve missed weddings, birthdays, lunches, and have completely lost my once active social life in the evenings. It’s difficult sometimes when you know your social group is all together having fun and you are yet again laying down quietly to conserve the precious little energy you have.
But…!! Today I wasn’t missing. Today I made it to a friends annual wedding anniversary barbecue (first time in three years I’ve been able to go) and it was so, so lovely. The sun was even out which is miraculous for a British May Bank Holiday! I managed to find myself a seat in a corner in the shade, I treated myself to a rare alcoholic drink and enjoyed a heavenly Mojito, surrounded by friends, dancing children, chatter and laughter.
I left when things were still in full swing but that’s okay, I know even on better days not to push too much and it was starting to get a little louder which I struggle with (background noise can be draining).
So I’m home now, windows open, sun shining, listening to the birds tweeting on a quiet Sunday evening. And I’m incredibly grateful for today, for these few hours of sunshine and laughter with people I love.
As always, Namaste 🙏💙